Celiac Race had 130 entrants

This year's Celiac Awareness 5k Run/Walk in Houston had 130 entrants. The numbers keep improving. See you all next year!

Training going fine. Celiac Run soon...

This morning I was up early and went for a 55 minute walk/run. My knee walks fine now, and I can run on it a bit. I still have a 'hitch in my giddy-yup' as they say, but it irons out more and more as I work on it.

A week ago I was in Wisconsin for a family reunion. I was able to hold the bronze medal one of my relatives won in Beijing. That was inspiring, and it helped me through my 2 1/2 hour workout (mostly walking) there. The cooler weather didn't hurt either.

The Celiac Awareness Run/Walk is coming up soon, soon, soon. I'm looking forward to spreading the word.

UFC athlete benefits from Celiac diagnosis

I never, ever tire of seeing stories where an athlete is diagnosed with Celiac, and their training program immediately improves.

Here's a story of an athlete from the UFC. (There are some inaccuracies about Celiac in the article). I wish Dennis Hallman the best of luck. (And get your kids tested, Dennis!)

Lows and Highs - Independence Day for Celiacs...

With marathon training season upon us in Houston, this Celiac was feeling a little down as I tried to schedule my July 20 appointment for post operation review. Every time I had, the scheduling screen did not show up, leading to delays while the clinic staff consulted with the tech support, etc. I told them that not running was absolutely killing me (see my post on the Ironman).

Finally, the answer was that the doctor was going on vacation, until the 29th. Three hours of "Oh no..." and then - "If you can come in tommorrow, he'll see you." Sweet - please pray I get cleared for at least jogging.

In other big developments - The rumor is that Jason's Deli will roll out gluten free bread system wide! This weekend! I'm so excited - the only thing is that you have to ask for the special prep area. Happy July 4th.

Probiotics good for Celiac

Back in March 2009, I posted about probiotics being a good idea for traveling Celiacs. Now comes Science Daily reporting a study in the Journal of Leukocyte Biology explained in more common terms by Dr. Michelle Sullivan. She recommends a daily probiotic. There doesn't seem to be much downside except the expense, and the upside could be pretty dramatic.

Mass Celiac Screening Cost Effective

Screening young adults for Celiac is cost effective, says an Israeli study. It would be an excellent use of CDC money to do the same analysis for the US, especially since it appears it takes longer here to get a diagnosis (11 years?) than in Israel (6 years).

Out of Surgery today, still a bit groggy

Well, it doesn't appear that being a Celiac affects surgery for an ACL much, but I did find out quite a bit about the medical process. Every step of the way, I've told every medical professional and coordinator about my vitamins/supplements and that I was a Celiac. (. I wore my Awareness run t-shirt more than once). It must have been at least 10-15 people. Low and behold, I'm being prepped for surgery, I am doing one last review and Celiac is not in my surgery records! We fixed that.

Probably all well and good as things went fine, but what if they had to transfer me to a hospital?

Anyway, at least my anesthesiologist had a sense of humor and said, "I promise I won't feed you bread while you're asleep."

I wanted to publicly thank all those who prayed for me and had me in your thoughts. Given the amount of damage my surgeon saw in my MRIs that first week, I am doing much better than average. Please keep it up, maybe these nerve blockers will wear off and I will be able to feel my leg again soon!

Houston Celiac Awareness 5K Run/Walk

I braved the cold and the lines this morning to get the park for the Houston Celiac Awareness 5k Run/Walk today. It will be October 9, 2010. See you there.

Met a Celiac on a 21 miler today

What are the odds of that?

That's the longest run before the Houston Marathon. Kinda glad its over.

Top Five Impacts on Celiac Awareness

This blog is about increasing awareness for Celiac, so I thought I would name my top five in what I consider to be most important for raising Celiac diagnosis rates and Celiac awareness generally in the last 10 years.

#1. The phenomenal growth of diagnosed celiacs - a self-feeding loop
#2. Celiac Consensus Meeting @ NIH - moved many doubters away from complacency
#3. Elisabeth Hasselback story and book - mass appeal
#4. Establishment of National Foundation for Celiac Awareness - first organization specifically focused on awareness to the exclusion of other activities
#5. Heidi Collins named NFCA spokesperson, cuts Public Service Announcement - brought star power and attention to the cause.

Blog post inspired by the survey at Savvy Celiac.

Cedric Benson, QB move up depth chart after diagnosis

These kinds of stories never get old to me. Athletes suffer from Celiac disease, find out, and then improve once they start the gluten-free diet.

Here's a story that features Cedric Benson and his Celiac challenges prior to his current Pro Bowl caliber season with the Cincinnati Bengals.

Here's another great story about a celiac quarterback who moved up the depth chart and started against Alabama.

Celiacs - check your freezer

I just saw this voluntary recall of Van's Pancakes. I keep telling my wife that just because it says wheat free on the box doesn't mean it is really gluten free. Now I can say that just because it says gluten-free on the box, it doesn't mean that it actually gluten-free, either.

Bruise count

Training is going really well for me right now, but I've had some of those "out of training" accidents. I was moving the woodpile (for the third time!) to get it away from the house. The exterminator recommended it because a woodpile basically invites termites. So I trenched around the house and moved the woodpile. One of the pieces hit my foot and caused a big ole bruise on my foot/ankle. It doesn't hurt (much) and I can run on it, but it could have been worse.

That makes about three bruises (new and/or healing), plus the ones I haven't found yet.

Why bring this up? Well, training for big long distance events is different than shorter ones. With shorter ones, you get injured and say, "Oh well," you rehab, and you do an event a few weeks later after you heal. Big long distance events are riskier. They usually involve a lot of training time and some travel expense. If you miss one of these events due to a freak injury, you may have to wait a month or even a year to try again. "Moving the woodpile" should be added to the list of "don't do this right before a marathon/big tri."

Reading around the web, now this Celiac has a reason to avoid remodeling projects, too - possible gluten in the drywall! Thanks for sharing that one.

Feeling better in 2 weeks

Here's a heartwarming story for the karate enthusiasts in your life. It's about a celiac athlete who has a black belt. She went on the gluten free diet and felt better in 2 weeks. It's typical of athletes who have been diagnosed properly.

Gluten Free Cake available at Starbucks

I had occasion to go into Starbucks today, so naturally I had to try the Gluten Free cake in the individual wrapper. It was good - 290 calories good. But it was small for the price, I thought. It's a great, widely available option for Celiacs.

Managed care insurers now have an economic reason to diagnose Celiac Disease

One of the barriers to awareness and diagnosis of Celiac disease has been the lack of enthusiasm on the part of health insurers. Now things have changed, and it is about time.

The Journal of Insurance Medicine has published a Celiac economic study by the Celiac Disease Center in Columbia that shows a decreasing cost after diagnosis.

"Researchers led by Dr. Peter Green, a professor of clinical medicine, said their study of a large managed-care database revealed cost reductions after diagnosis of celiac disease were attributable to decreasing trends in utilization of office visits, laboratory tests, diagnostic imaging and endoscopy procedures. "

This study is years overdue (see this two year old post including insurers), and it finally gives managed care insurers an economic reason to make sure all Celiac disease sufferers in their populations are diagnosed.

As a next step, I hope to see data-driven suggestions from these insurers soon. For example, it would be cheap and effective for them to send an email to segments of their population saying something like, "You have chronic iron-deficiency anemia. The differential diagnosis for that condition includes Celiac disease. Have you discussed it with your doctor?"

A little insurance for Celiacs on the road?

I saw a recent posting on a Celiac site about a study from Finland. It said that:

"Bifidobacterium lactis inhibited the gliadin-induced increase dose-dependently in epithelial permeability, and, at higher concentrations totally eliminated the gliadin-induced reduction in transepithelial resistance."

OK - all fancy words that basically say that a probiotic kept gluten from getting through gut cells (in a petri dish).

Now, I think that's really hopeful news and here's how I'm going to use it. First, a petri dish is not a controlled human study. I am not going off the gluten-free diet to give it a try, and I think anybody would be nuts to do so. But from time to time, a restaurant will do that for me without my knowledge. We've all been there and done that, right? So I think that I'll just start taking a probiotic with B. lactis in it during times when I'm at higher risk (like on the road for a race or eating out a lot, for example).

I've had some pretty good luck using probiotics after a course of antibiotics and never had a bad reaction, so this seems to me to be a pretty good and relatively inexpensive way to keep ahead of the cross-contamination issue. Peaking correctly for a race or event is hard enough as it is, and this approach might just be some reasonable insurance on the diet side.

Does Steve Jobs, Apple's CEO have Celiac?

I saw a post on the Motley Fool site about Steve Jobs. Mr. Jobs has lost a lot of weight recently. He is CEO of a major company, and Apple doesn't have much in the way of a succession plan, so even the Wall Street Journal is interested in his health.

It is not a stretch from a numbers perspective. One has to figure that there are probably four to seven CEOs of Fortune 500 companies having to work with the issue, whether it is known by them or not. (It may be that the effects of being an undiagnosed Celiac keeps people from the top job).

There were two things that I thought were interesting about the article. One was the "oblique" reference to Celiac. By "oblique" I mean that Celiac was mentioned, but it wasn't the focus of the article. It was mentioned as an aside, and I think that is a great development for Celiac awareness. The second item of was and continues to be Steve's struggle to maintain his medical privacy in the face of legitimate investor concerns. Can anyone imagine how difficult a situation it would be where you didn't feel comfortable telling your co-workers you have Celiac? Personally, I made the decision a long time ago to tell everybody. But what is good for me and what is good for Steve Jobs are two different things. Sometimes it is hard to be a celebrity.

Wednesday Update. A Time magazine posting mentioned Celiac as a possible cause.

Elite Weightlifter with Celiac

The Boston Globe reported a story about a weightlifting athlete with Celiac. I had a couple of thoughts about this interesting article. She keeps three meals prepared at all times. That really surprised me as an potentially effective way to keep thoughts about hunger at bay.

Another was that her parents pushed her into weightlifting at the age of 12, to help with her swimming. I don't recommend that. I think the chances that kids can overdo it and wreck some part of their body for good is just too high.

Finally, she mentioned that on a road trip she bought bottled water and gained a small amount of weight because there was too much sodium in it. Weightlifters hate extra weight because of their weight classes. That's a real "thinker," because sodium can be pretty useful preventing cramps - but weight can be a problem for athletes such as myself. I guess perhaps we just file this under "interesting, potentially useful."

GIG conference ROCKS!

The GIG conference was held this past weekend in Dallas. I went up Friday night after work for the Saturday session and drove home Saturday, but the long drive, expense, time away from my family, $4 gas and short sleep was all worth it.

The day started at 5:15, when my wake up call came for my 10 mile long distance run. Unlike other conferences, my running buddy was a fellow race director and we talked as only two GF long-distance runners can. Most of it was about the distance, training plans, etc. But a lot of it was about how we were going to meet our respective "next challenges" and in some part, how Celiac plays a role in that. So the miles "flew by" (Literally - she's fast, so I'd agreed to run harder than normal, and my legs are still somewhat sore). But it was an awesome run - and slightly less humid than Houston.

And then there was check-in and breakfast. Food vendors were all around with various dishes on offer, and there was the regular buffet line. I went for a corn tortilla, bacon, and eggs, but I stopped cold after the scrambled eggs. I went into what I call "cross contamination mode" as an entire tower of various breads sat next to the eggs. I told myself, "It's all gluten-free." It took saying it about three times, but I finally started to believe it. And that's when the security settled in - that calm feeling you have when you are "safe." It drives into your core and you say, "this day, I'm not worrying about food, period." A few weeks back, I talked about the "desperate hunger" of a diagnosis and the uncertainty around food. This conference was the antidote - where the food world revolved around me (like it used to, pre-diagnosis).

There was a "buzz" here, too. You wouldn't hear talk of poor business prospects here. Vendors all had smiles and talked about going from success to success in a market growing at 30% a year. Lots of individuals were taking on lots of initiatives -- new races, new newsletters, new research, new findings. There was more opportunity than people, and you could feel that in the air.

The MBA in me also noticed that people were wearing fewer hats as things have become big enough to specialize and divide responsibilities into what people are 'good at." People were in their element, researchers, nutritionists, vendors and participants didn't have to be all things to all people. There's a part of me that wonders if that will be a conference effect, or if people will carry that home, thinking, "THAT part of the community need is something I don't have to do anymore..."

I went to a few sessions. None were boring, so I may blog about them in the future. Time for bed now.